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New Study Shows Difficulty of Identifying Transgender Individuals Using EHR Data

Oncology Practice Insider

In order to understand and eliminate disparities in cancer incidence and outcomes among transgender people, clinicians and researchers must have data. However, this data is very difficult to obtain because gender identity data are not routinely collected in oncology practice health records.

A new study published in JCO Oncology Practice reports what researchers found when they used ASCO’s CancerLinQ Discovery® database to try to identify transgender people with cancer based on electronic health records (EHR). CancerLinQ is a real-world oncology data platform developed by ASCO that collects and aggregates longitudinal EHR data from oncology practices throughout the United States. By using data from more than 2 million patients in near real time, CancerLinQ can identify trends and associations between myriad variables, thereby enabling physicians to generate new hypotheses and apply those conclusions to improve care in real-world settings.